This was my talk from last Sunday. It is also Carson's birth story. It has taken me 12 years to have the courage to write it down.
Last Sunday, I was sitting in Sacrament meeting listening to Brother McCullough's talk and when he mentioned Ethan Benoit helpingCarson pass the
sacrament, this talk started forming in my head which was kind of weird since I
hadn't been asked to give a talk. I
thought that maybe I was being prompted to share my testimony in a few weeks
and I was really hoping that that prompting would go away before the first
Sunday in August because it takes a lot of courage for me to bear my
testimony. I guess Heavenly Father knew
that about me so He had Brother Jacobs call and ask me to give a talk instead.
Last Sunday, I was sitting in Sacrament meeting listening to Brother McCullough's talk and when he mentioned Ethan Benoit helping
The topic I was assigned was a talk from Elder Bednar
entitled "Bear Up Their Burdens With Ease" which you probably
remember started out with a story about his friend who took his truck out to
gather firewood one evening, got it stuck in the snow, decided that he would
just fill the bed of the truck with a load of firewood, which was what eventually
allowed him to get his truck unstuck. I
have kind of changed the topic up a bit to... "How I came to be sitting in
Sacrament meeting crying because I glanced over and saw my 12 year old son with
Down Syndrome sitting on the wrong pew because he didn't want to hold the
hymnbook and sing so he moved to the empty pew where no one was offering
hymnbooks, with his shoes off....shoes that were not his church shoes but his
old green tennis shoes because we couldn't find his church shoes....while his
dad sat beside him trying to convince him to put them back on before the
Sacrament hymn ended because he was about to pass the Sacrament for the very
first time and my tears weren't about the shoes or the pew but about how far we
have come and how blessed I am to be his mom!" It's a long title, I know, and I pray that
the Holy Ghost will guide me as I do my best to share what I felt prompted to
share and combine it with Elder Bednar's talk.
The second time that I felt like something wasn't quite
right was right after he was born. His
first cry was unlike any baby cry I had ever heard. It sounded really soft and weak to me. They told us that everything looked good but
they took him over to the exam area and kept him there for a really long
time. The on-call pediatrician came over
and told us that he was healthy as far as she could tell but that she was
90something% sure that he had Down Syndrome.
Sometimes, I wonder, ifGary had had a list of all of the trials that
we would face in our married life, if I would have had the courage to say
"yes" when he asked me to marry him and this challenge just seemed
like the one that broke me. The first
words out of my mouth were "I can't do this!!" and my first instinct
was to run....luckily an epidural and an IV line made that impossible. I even asked Gary at one point if he thought we should
give him up for adoption. Gary rarely,
if ever, says anything unkind but I can usually tell what he's thinking by the
look that crosses his face and the look that crossed his face that time was
something like "she's finally lost it!" but the words that came out
of his mouth were more like "no...he's our baby and we will be fine! Everything will work out!" I will always regret that my first reaction
to Carson
wasn't one of joy and excitement.
Sometimes, I wonder, if
We called my mom and told her and she reassured me that we would have the support of our family and that he would be loved just like our other children. Then she called my neighbor who called our bishop. He must have dropped everything to come to the hospital because he and one of his counselors who happened to be the husband of a good friend of mine were there within an hour of
He came and talked to Gary
and I for a few minutes and then he asked me if I had been able to hold Carson yet. I hadn't so they all walked down to the
nursery and brought him back and handed Carson to me. We asked him if he would give Carson a blessing. He looked at me and said "Carson is going to be
fine...he doesn't need a blessing but I will give you a blessing." This is another excerpt from his letter: "Now
for the hard part - me being inspired to give you that blessing. I will just
say that there are those times when you know that you really don't know (if
that makes any sense) and you ask the Lord for his help and guidance and
that's the way it was that night. I listened to the Holy Spirit and knew
that Carson was going to be fine because Heavenly Father had sent him into
your family and then the Holy Spirit simply said bless Shanon so that
she knows that I want Shanon and Gary to care for and
love Carson and in doing so their family will be blessed and
have eternal joy and happiness."
For the longest time, I
couldn't remember what he said in his blessing but I remember that a huge
burden was lifted from me. I was still
worried, I still felt inadequate, I still felt like there were so many others
that would be so much more qualified than me but something changed after that
blessing.
It reminds me of my favorite scripture
(Mosiah 24:13-17) in the Book of Mormon which is also mentioned in Elder
Bednar's talk:
Carson and Bishop Norris |
"Consider
the example in the Book of Mormon as Amulon persecuted Alma and his people. The
voice of the Lord came to these disciples in their afflictions: “Lift up your
heads and be of good comfort, for I know of the covenant which ye have made
unto me; and I will covenant with my people and deliver them out of
bondage."
“And
I will also ease the burdens which are put upon your shoulders, that even you
cannot feel them upon your backs."
Many
of us may assume this scripture is suggesting that a burden suddenly and
permanently will be taken away. The next verse, however, describes how the
burden was eased.
“And
now it came to pass that the burdens which were laid upon Alma and his brethren
were made light; yea, the Lord did strengthen them that they could bear up
their burdens with ease, and they did submit cheerfully and with patience to
all the will of the Lord."
The challenges and difficulties were not immediately removed from the people. But Alma and his followers were strengthened, and their increased capacities made their burdens lighter. And "in the strength of the Lord", Alma and his people were directed to safety in the land of Zarahemla."
The challenges and difficulties were not immediately removed from the people. But Alma and his followers were strengthened, and their increased capacities made their burdens lighter. And "in the strength of the Lord", Alma and his people were directed to safety in the land of Zarahemla."
We were also blessed with what I can
only call miracles. My doctor came in
the next day and told us that the only health issue Carson had was a possible heart defect that
usually corrects itself within the first few years of life. We had a visit from a geneticist who was on
vacation but came to see us. I have
honestly never met anyone more excited that I had a baby with Down Syndrome
than her. She made me feel like I had
just won the baby lottery. She also
happened to be a doctor that loved people with Down Syndrome so much so that
she had devoted much of her life to start a clinic for families of children
with Down Syndrome so she knew all of the best doctors and what I should do
once things had settled down, she even contacted another family that generously
visited us in the hospital so that we could see for ourselves that having a
baby with Down Syndrome wasn't the end of the world. I also had friends who called or came to
visit. One of the things I was worried
the most about was how Carson would be treated by others and then two of my
good friends came and treated him just like any other baby and probably would
have tried to snitch him and take him home with them if I hadn't been watching
them closely.
We finally left the hospital
and when I got home, I ordered or borrowed from the library several books on
Down Syndrome. That was the biggest
mistake I made. I remember one night,
sitting on my bed surrounded by all of these books and I had just read about a
21 year boy who was attacked on a city bus and I started worrying about Carson riding a city bus! He was a week old! All of a sudden, this thought came to me
"Shanon...he's a baby who happens to have Down Syndrome! You know how to take care of babies!! Just take care of him the way you took care
of all of your other babies!"
So...I put the books away and I took care of my baby. I just learned to learn as I go.
Another quote from Elder
Bednar states:
Each of
us carries a load. Our individual load is comprised of demands and
opportunities, obligations and privileges, afflictions and blessings, and
options and constraints. Two guiding questions can be helpful as we
periodically and prayerfully assess our load: “Is the load I am carrying
producing the spiritual traction that will enable me to press forward with
faith in Christ on the strait and narrow path and avoid getting stuck? Is the
load I am carrying creating sufficient spiritual traction so I ultimately can
return home to Heavenly Father?”
Sometimes
we mistakenly may believe that happiness is the absence of a load. But bearing
a load is a necessary and essential part of the plan of happiness. Because our
individual load needs to generate spiritual traction, we should be careful to
not haul around in our lives so many nice but unnecessary things that we are
distracted and diverted from the things that truly matter most.
In my case, I was being distracted by unnecessary worries
that were pulling me away from the joy of having a new baby in the family.
We have been blessed with so many people along the way that
have helped us. When he was learning to
walk, he had a tiny walker that our physical therapist gave us to use. I was worried what people would say when they
saw him using it. We took it to church
that first Sunday that he had it and he caused quite the stir!! Not because anyone was judging us or him but
because he was so cute he was a distraction!!
When he was learning how to eat solids and I was overwhelmed trying to
get him to eat, I had a friend who went out and bought every kind of baby food
you could imagine and she would take him home with her and sit there patiently
feeding him and had a blast doing it.
When he was learning how to be potty trained he had an angel of a
teacher who told me that she would have him potty-trained before the end of the
school year and excitedly took on that challenge and then taught me what I
should do at home. He has had great
primary teachers that have gone out of their way to teach him. He has had great scout leaders that have
loved him. When he turned 8, we wondered
if we should baptize him and as we talked to Bishop Parker, he felt like we
should wait for a while which was a relief to me. He told us later on that he had an impression
that Carson
would ask to be baptized when he was ready.
One night we were sitting on our bed and Carson held his nose, tossed his head back
and said "baptize." When
Bishop Parker came over to do his interview, Carson , who was wearing shorts at the time
got really upset and ran into our bedroom.
Gary followed him and found Carson pointing to his
church clothes. As soon as he was
dressed in his Sunday best, he came out and happily sat down with Bishop Parker
which is how Bishop Parker knew that he was ready for baptism because by his
actions he showed Bishop Parker that he knew of the sacredness of baptism.
Just recently, I asked Ethan Benoit and Cameron Parker if they would help him learn how to pass the Sacrament and they took time out of their summer to come here during the week to help him learn. They were so patient with him and did a wonderful job of representing the Savior as they magnified their priesthood calling.
Just recently, I asked Ethan Benoit and Cameron Parker if they would help him learn how to pass the Sacrament and they took time out of their summer to come here during the week to help him learn. They were so patient with him and did a wonderful job of representing the Savior as they magnified their priesthood calling.
Elder Bednar
says: Not only does the Atonement of
Jesus Christ overcome the effects of the Fall of Adam and make possible the
remission of our individual sins and transgressions, but His Atonement also
enables us to do good and become better in ways that stretch far beyond our
mortal capacities. Most of us know that when we do things wrong and need help
to overcome the effects of sin in our lives, the Savior has made it possible
for us to become clean through His redeeming power. But do we also understand
that the Atonement is for faithful men and women who are obedient, worthy, and
conscientious and who are striving to become better and serve more faithfully?
I wonder if we fail to fully acknowledge this strengthening aspect of the
Atonement in our lives and mistakenly believe we must carry our load all
alone—through sheer grit, willpower, and discipline and with our obviously
limited capacities.
Here is one more excerpt from my Bishop's letter: "I remember when your father stood and bore his testimony in Fast and Testimony meeting after Carson was blessed - I can't remember his exact words but I remember knowing that Carson was sent to your family from Heavenly Father because there would be so much love and caring for him in your family and this would be a bond that would bless you and all your children now and forever."
One of the greatest blessings
that I have received from Carson
is being able to see and recognize how wonderful and caring my other children
are. They teach me everyday how to love
everyone even those that are different.
They truly live the Savior's teaching to "Love One Another".
The Savior said:
“Come unto me, all ye
that labour and are heavy laden, and I will give you rest.
“Take my yoke upon
you, and learn of me; for I am meek and lowly in heart: and ye shall find rest
unto your souls.
“For my yoke is easy,
and my burden is light” (Matthew 11:28–30).
We are not and never
need be alone. We can press forward in our daily lives with heavenly help.
Through the Savior’s Atonement we can receive capacity and “strength beyond
[our] own”. As the Lord declared, “Therefore, continue your journey and let
your hearts rejoice; for behold, and lo, I am with you even unto the end”
(D&C 100:12).
In his book, Why Did This Happen to Me?, Ray Pritchard
says: “Sometimes we will face things for which there is no earthly explanation.
In those moments we need to erect a sign that reads, ‘Quiet: God at Work.’
Meanwhile, hold on, child of God. Keep believing. Don’t quit. Don’t give up.
Let God do His work in you. The greatest tragedy is to miss what God wants to
teach us through our troubles.”
Heavenly Father will provide for us...maybe not in the way we think He should but always in the way the He knows is best for our individual growth and progression and our Savior will be there right beside us, every step of the way, to provide comfort and reassurance. It is the reason He came to earth. All week long, I have wondered and pondered on why I felt prompted to share this particular story. It is a hard one for me to share. My answer came as I was reading in Mosiah 24: 14 which says in part "...and this will I do that ye may stand as witnesses for me hereafter, and that ye may know of a surety that I, the Lord God, do visit my people in their afflictions." I realized that part of my covenant is to stand as a witness for God and testify that He does indeed visit His people in their afflictions. Of this, I know and testify of in the name of Jesus Christ, Amen.
7 comments:
Seriously beautiful Shanon! I will always remember his sweet smiles. Wish I was there to see him pass the sacrament. What a wonderful young man he had become.
I love you and that sweet boy of yours! What a beautiful witness and testimony. I'm so grateful you shared your story. Miss you!
Beautifully said, Shanon!!! Carson has been, is and will always be a delight. I have been privileged to be a fly on the wall, at times, thru this blog, to witness the blessing he truly is even through his trials!!!
What a beautifully written talk. Thanks so much for sharing your honest experiences and your testimony. I read your post out loud to my in-laws this morning and they were so uplifted by it also.
So, Holland is a great place after all! :) You are beautiful, Shanon. Your story is beautiful. Your family is beautiful. Your testimony is beautiful. And you make the world around you more beautiful all the time. Thank you for sharing.
Shannon, In all my 71 years I have never read or heard anything that moved me like your talk. I could not keep my eyes dried or my nose wiped during the whole talk. I have not felt the spirit that strong in a long, long time. Thanks for sharing a piece of your life with me. Our heavenly Fathers only sends his special spirits to special families.
Shanon, we love y'all so much. Thanks for letting us in on your special journey. Carson is priceless. So are you. Hope you don't mind if I share this with my family. Love and miss you.
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